We made our way into Boston again today for an appointment with Dr. Rosenburg from the Zakium Center for integrative therapies at Dana Farber.  We talked a lot about acupuncture and the importance of nutrition for cancer patients. The formula for the feeding tube is something I have been struggling with since we started using… Continue reading Exploring more ‘alternative’ therapies

We did it, 4 weeks in a row! Because Kai’s labs were done yesterday we were out of there so fast today, but not before Kai did his rounds showing off his TURTLE costume! Kai was the ONLY kid dressed up today,  but it was worth it because his cute little self made everyone smile!… Continue reading Chemo vacation starts now!

We had Kai’s labs done at umass yesterday and his counts were still good enough to qualify for chemo so we will be headed into Boston this morning as planned.  I’m actually excited we are able to make it, all the kids will be in there Halloween costumes this week at the Jimmy Fund.  Can’t… Continue reading Costume day at the Jimmy Fund!

Kai and I really packed in a lot this Friday. Kai had his second acupuncture treatment. It was a pretty amazing appointment. Kai really lit up as soon as we got into the room. He was babbling and playing and very excited to see Jacqueline.  His mood continued this way through most of the treatment,… Continue reading Another festive weekend

started writing this post after chemo on Wednesday: I’m finally starting to feel like we are in a good grove with all this chemo stuff.  No long hospital stays lately and Kai seems to be tolerating his treatments pretty well this time around.  Today was a pretty easy day.  His counts were good and we… Continue reading week 13

Here  are some of the amazing photos our friend Chieh took for us over the weekend.  We are so lucky to have such a talented friend! Thanks Chieh!

Wow another very busy week.  Lots of friends, food, and Fall activities! After Kai’s treatment Wednesday we had dinner at Ashley’s before picking up ba noi (Marks mom) from the airport. She will be with us another two weeks before moving on to AZ to visit Keith, Marks brother.  She has been cooking up a… Continue reading friends, food, and Fall fun!

Going back to chemo after having a few weeks off is always hard, but getting to see a few of our good friends definitely helped make the day a little easier. Kai and I drove into the city early Wednesday morning to meet Molly for breakfast.  It was a great way to start the day. … Continue reading We’v been busy

By wearing  your KAI’S FIGHT CLUB wristband you can help spread awareness for Pediatric Brain Tumor and Childhood Cancer Now in 2 sizes! Regular- 8 inches               Small-7 inches please let me know if you would like small, otherwise  I will send regular size

We made it through our long day of  appointments yesterday and had  a lot of good results. Kai’s vision shows appropriate improvement for his age!   This result coupled with the stable MRI suggests the tumor has not changed which is what is what we were hopping for!  His hearing was also tested shows no loss!… Continue reading Three month Check up