Kai Parker Rezendes
9/5/10 – 11/27/12
Kai was diagnosed with an inoperable brain tumor, a hypothalamic-optic glioma, at 8 months old. His tumor, although low grade (some even called it benign), was large and diffuse infiltrating many areas of his young brain. After sixteen months of treatment the tumor took his l life just after his second birthday. This is his story, which forever changed mine – life of Kai.
Kerri ~ forever Kai’s mom
Original Post at Diagnosis :
As most of you know on May 28, 2011 Kai was diagnosed with a brain tumor – a Hypothalamic Optic Glioma. Although Kai’s tumor is inoperable his doctors are hopeful that treating it with lowdose chemotherapy over the next 60 weeks can keep it under control and prevent any further growth.
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After about 10 months on chemo (carboplatin/vincristine) Kai ‘failed’ off this protocol. He had NO shrinkage during this time and while his MRI showed no change in the tumor his clinical symptoms have worsened, mainly his vision.
Kai is now considered legally blind and started a new chemotherapy protocol April 2012. He will now receive avastin/ irinotecan bi-weekly for the next one to two years.