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A Thank You to My Son’s Hospice Volunteer

I wanted to take a moment to thank all of the amazing amazing volunteers in my life over the years   #volunteerweek I am forever grateful to the dedicated volunteers that supported us Why Me     Camp Sunshine     The Respite Center Perkins School     Jimmy Fund    Kai’s Village “Great opportunities to help others seldom come, but… Continue reading A Thank You to My Son’s Hospice Volunteer

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E pluribus unum, one out of many – advocating for all.

Powered by Kai to Advocate for Families Now: My testimony in support of  S1138 On June 10, I joined a small group of pediatric palliative care professionals and advocates to testify before the State on behalf of providing comprehensive palliative care to ALL qualifying families in Massachusetts. I really had no idea what I was really agreeing too… Continue reading E pluribus unum, one out of many – advocating for all.

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Modern Loss | Anticipatory Grief a No Man’s Land

Thanks to the work I have been doing with Courageous Parents Network I have had many new opportunities to share our story lately.  I have presented at serval professional conferences, contributed to several articles and been involved in helping others share THIER stories, which I particularly love. This piece I wrote came out today on… Continue reading Modern Loss | Anticipatory Grief a No Man’s Land