Kai has had a pretty good week since his last treatment. There have been a few rough days but overall he has still been sleeping and eating well. He has been loving spending time with ba noi and eating up all her good cookin!!! She is an amazing help and we all love having her… Continue reading here comes Wednesday again
Kai has continued to have a great week so far. He has still been sleeping well, with the exception of one night, and yesterday his first tooth finally broke threw! He has been so smiley and interactive since he’s been getting some sleep. This morning Mark even got him to LAUGH for the FIRST TIME!!!… Continue reading Lots of firsts this week!
Wow, we made it one whole week at home and things are going great! Kai is continuing to sleep well, he slept from 8pm-5:30am last night!!!!!! I cant believe what a difference this is making in all of our lives! Since we have all been well rested we have been able to get a lot… Continue reading 7 days in a row at home!
This is the third night in a row that Kai has slept from 8-3am! The past two nights he was able to put himself back to sleep in less than 10 mins. without me going in at all!!!! I think that sleep study scared him straight! He is on melatonin, but no pain meds and… Continue reading Scared Straight… into sleeping!
Against my own better judgment we went back in last night for another shot at the sleep study. We made it threw the night but it went pretty much the same as last time. Kai woke every half hour or so screaming! It was torturous, miserable and I spend the whole night thinking how I… Continue reading Sleep Study round 2 & chemo week 6
It is SOOOOOO nice to be home!!!! I was so disappointed that it has been raining since we got out of the hospital this week but today I ended up really enjoying the gray day at home. Kai and I had a morning doctors appointment, visited with family and had lots of snuggle time. He… Continue reading Rainy summer day AT HOME!
They keep telling us the risk of infection after gtube placement is low, even for chemo kids, yet here we are spending another weekend with our favorite hospital buddies Meg & Addie, both kids with infected gtubes! Seriously!?!? We did get out for about 24 hours Wednesday night after surgery. When we got out we… Continue reading Infection
Thankfully today was much better than yesterday. We are still keeping ontop of Kais pain meds, but he has required less and less as the day went on. He is still resting compfortably and the nurses are teaching me about his new gtube in anticipation for us going home tomorrow…we will see We are still… Continue reading A better day
update: For now Kai has all the blood he will need. If he ends up needing regular transfusions in the future we will be setting up scheduled clinic days for people to come and direct donate. I will personally have to add you to the list for the hospital so please contact me directly if… Continue reading Blood donations needed
Wow what a horrible night here at childrens. Kais surgery went well. It was quick and seemingly simple just as they told me it should be. What they did not tell me is how horrible the recovery would be. He keeps waking up screaming every few hours. He is in so much pain it is… Continue reading Gtube surgery
Keikikai 