Kai’s recovery from his ear infection was short lived. By Thursday he was back to being whiny and tired so we went straight to the pediatrician again. She said his ears were improving and he shouldn’t be this uncomfortable anymore. She was now worried about his shunt and wanted us to go into Children’s… Continue reading A short stay
Ahhh we live for these weeks off chemo! Unfortunately Kai remains pretty tired and irritable from his 4th chemo treatment last week, but we are hoping he will begin to feel better each day this week and enjoy some of this time off! He is getting 2 molars and seems to be starting a… Continue reading Thank You!
Kai had his 4th week in a row of treatment yesterday, which means we successfully finished another cycle! He will now have a two week break before starting back up again. After next months cycle we will be back in MRI to see how things are looking. His treatment really seems to be settling into… Continue reading Tubie friends
Kai has needed lots of cuddles and snuggles the past few days. Going into chemo this week He wasn’t feeling so great. He had really low energy starting on sunday and he seemed to be in some pain. Of course it’s always hard to know for sure, is he just tired? In pain? Maybe he’s… Continue reading Cuddles and Snuggles
As expected, Kai did well at the clinic yesterday. Although his hearing tests are always a challenge, they were (after 3 different screening methods) able to confirm his hearing is working just fine. The problem seems to be that he just isn’t that interested in their tests. After audiology we went back over to the… Continue reading just another day
Hoping you all had a wonderful Christmas with family and friends! We were so lucky to have Kai’s break from chemo right around the holidays. He has been feeling better and better with each day since his last treatment and we were able to do lots of visiting with family and friends. He was spoiled… Continue reading Happy Holidays
Thank you to everyone who purchased our hand made ornaments to benefit Pediatric Brain Tumor research! I was amazed at the response from everyone. We sold 70 ornaments and raised just over $400! We hope to do it again next year. Happy Holidays to everyone and Thank You again for your continued support! http://www.fightplga.org/help
Kai’s MRI came back ‘stable, with possible signs of shrinkage’ according to DR. Kieran! Dr. Kieren feels the chemo is working and that we need to stay on track with his treatments, which means no more skipping a week unless ABSOLUTELY necessary. He said he doesn’t want to give the tumor the advantage by skipping… Continue reading Todays MRI came back ‘stable’!
Kai has been in great spirits and doing well this week. He did lots of holiday visiting this weekend and has just been all smiles the past few days! He seems to be moving his right hand a little more and he has been a little less shaky since his last acupuncture visit. I’m sure… Continue reading Tomorrow is MRI day
This was week of Kai’s two weeks ‘off’ chemo. Unfortunately we ended up taking a quick trip into Boston anyway. Kai’s gtube site was looking a little red and puffy and I was afraid of infection. I called his doctors and they wanted to take a look, so we went. Once they saw it they… Continue reading Week off, sort of…
Keikikai 