Ahhh we live for these weeks off chemo!

Unfortunately Kai remains pretty tired and irritable from his 4th chemo treatment last week, but we are hoping he will begin to feel better each day this week and enjoy some of this time off!   He is getting 2 molars and seems to be starting a little cold and I’m sure all of this is contributing to his irritability. It is just so hard to tell!

He has also been having a little tummy trouble lately, more like reflux rather than nausea.  He was prescribed reflux medication when he got his g-tube placed, but since adding in the blended food and cutting back on formula he hadn’t shown any signs of reflux, so a few months ago we took him off the meds.  He had been fine since….until last week. We talked about it at acupuncture on Tuesday and since his treatment he has had no more spit ups!  We are so thankful for acupuncture!

Today we got the call to schedule his mic-key switch.  He will have the procedure next friday.  It will be great to have that done before starting his next cycle.

This afternoon we took a leisure trip into Boston to visit with our good friend Molly. We met at Faneuil Hall for lunch and to pick up some more animals at Build A Bear!  Last week we made 6 Tubie Friends that were shipped out to kiddos all around the country!   This week we were able to take your donations and buy 9 more!  We will be making these 9 for local kids at Children’s Boston/The Jimmy Fund. I am working on getting Kai’s Tubie Friend ready for Kai’s surgery next week.  In addition to the placing the mic-key I am trying to figure out a way to put a (removable) port access and a shunt into his Tubie Friend, just like him! We’ll see how it comes out.

We want to send out a huge Thank you to all who donated to Tubie Friends.

We are so happy to be a part of this project and we wouldn’t be able to do it without you!

Thank you,

Nana, Liz, Karen, Allison, Molly, Mom, Maugs, Ashley, Dad & Michelle

and a special thank you to Colin for helping make a  Tubie Friend with me!