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We have a LONG day of appointments at Children’s Hospital tomorrow: vision, hearing, neurology and we are meeting with Dr. Keiran to talk about the results and look at Kai’s MRI from a few weeks ago.  Of course I am again feeling very conflicted about starting up chemo again so I’m sure we will have… Continue reading Just for fun

Childhood Cancer Awareness month is half over, but there are still plenty of events going on to help spread awareness in the next few weeks.  This Sunday  is  The Jimmy Fund Marathon Walk in Boston. Good luck to Mom, Sue, Margie, and Colette who will being walking 13 miles on Sunday and who have raised… Continue reading Jimmy Fund Marathon Walk/ Umasss Cancer Walk

The team just came and and told us we will be able to go home today! Kai’s ANC counts are low and still dropping so they decided to skip this week of chemo, induction phase is over!    He will start maintenance chemo on three weeks from today.   Two planned weeks off! Since he got an MRI… Continue reading ‘induction’ phase is over

After sleeping for 3 days, Kai woke up feeling much better this morning! In fact he’s right back to his old ways of making lots of noise and waking up at 5 am 🙂 The docs still want him to get an MRI today and they are talking about giving his chemo tomorrow as planned. The nurse… Continue reading Feeling Better

Yes, we are back in the hospital. Kai was doing well after chemo last week but saturday we noticed he seemed very tired. Of course one day I would love to be happy about a low key day with a sleepy baby, but as we all know Kai is not a sleeper. I knew somthing… Continue reading ‘Welcome back Kai’

A year ago today our precious baby boy was born!  Who would have thought this is where we’d be a year later…. Things sure havn’t gone how we’d expected, but its funny how your hopes and expectations change. Since we have spent so much time in the hospital lately, I really wasn’t expecting to be… Continue reading Kai is ONE!

If you would like to spread awareness by wearing a KAI’S FIGHT CLUB wristband please consider making a donation or email your name and address to Keikikai10@hotmail.com you can also contribute directly to childhood cancer research by donating to the Jimmy Fund in support of Kai! Thank you for your support in finding a cure… Continue reading Septmeber is Childhood Cancer Awareness Month

Kai counts were good yesterday which means he had another round of chemo and we were given the OK for an outdoor birthday party for him  this weekend! I am hoping he will be feeling better by then, because today was not great.  He has been very tired since chemo and today he was pretty… Continue reading It’s Party time!