As expected, Kai did well at the clinic yesterday.  Although his hearing tests are always a challenge, they were (after 3 different screening methods) able to confirm his hearing is working just fine.  The problem seems to be that he just isn’t that interested in their tests. After audiology we went back over to the… Continue reading just another day

Hoping you all had a wonderful Christmas with family and friends! We were so lucky to have Kai’s break from chemo right around the holidays.  He has been feeling better and better with each day since his last treatment and we were able to do lots of visiting with family and friends.  He was spoiled… Continue reading Happy Holidays

Thank you to everyone who purchased our hand made ornaments to benefit Pediatric Brain Tumor research! I was amazed at the response from everyone. We sold 70 ornaments and raised just over $400! We hope to do it again next year. Happy Holidays to everyone and Thank You again for your continued support! http://www.fightplga.org/help

Kai’s MRI came back ‘stable, with possible signs of shrinkage’ according to DR. Kieran! Dr. Kieren feels the chemo is working and that we need to stay on track with his treatments, which means no more skipping a week unless ABSOLUTELY necessary. He said he doesn’t want to give the tumor the advantage by skipping… Continue reading Todays MRI came back ‘stable’!

Kai has been in great spirits and doing well this week.  He  did lots of holiday visiting this weekend and has just been all smiles the past few days!  He seems to be moving his right hand a little more and he has been a little less shaky since his last acupuncture visit.  I’m sure… Continue reading Tomorrow is MRI day

This was week of Kai’s two weeks ‘off’ chemo. Unfortunately we ended up taking a quick trip into Boston anyway. Kai’s gtube site was looking a little red and puffy and I was afraid of infection. I called his doctors and they wanted to take a look, so we went. Once they saw it they… Continue reading Week off, sort of…

I designed this ornament to raise awareness and funds for Pediatric Brain Tumor Research this holiday season. The ornaments are available @ http://www.keikikai.etsy.com for $5 each All proceeds go to The Pediatric Low Grade Astrocytoma Foundation (PLGA) “100% of funds donated to the PLGA Foundation go directly to PLGA specific research in order to find… Continue reading Holiday Ornament to Benefit Brain Tumor Research

As usual Kai kept everyone on their toes at yesterdays visit. We left the house at 6 for an 8am Ophthalmology appointment.  As you know Kai has had some different symptoms in the past few weeks that have been concerning us.  While he has been more allert and awake this week he is still less… Continue reading low counts, glasses and alergic reactions

Another busy week has seemed to escape us! We went into the clinic last Wednesday but ended up not getting chemo.  Kai was not acting himself all weekend and it seemed to be getting worse each day.  He was very sleepy and low energy.  He was also whining a lot and waking many times in… Continue reading He’s a mystery

We hope all of you had a wonderful holiday this week.  I know we sure did! Kai did very well visiting with everyone on Thanksgiving.  He was snuggling up to anyone who wanted to hold him, I barely saw him all day!  🙂 Mark had several days off work so he  was able to spend… Continue reading Thanksgiving