My Little Valentine
Loving Kai: a collection of photographs of Kai’s life pre-diagnosis
Day 5/ chemo
Opthomology went well. They said his vission is still stable, ‘no significant chamge’ my favorite statement….For one of the tests they cover one eye at a time to see how each eye does on it’s own. Kai was definatly very upset when his left eye was covered. We already know his right eye has less… Continue reading Day 5/ chemo
Awareness day 4/ post-op
Kai’s surgery went great. His long yellow tube is gone and a new little button is in it’s place. With just the little button left his body looks even longer and bigger! We were in and out pretty quick, home by 2:30. We spent the rest of the day snuggeling and napping on the couch!… Continue reading Awareness day 4/ post-op
Day 3- understanding life with a feeding tube
Day 3 of feeding tube awareness week and we are sitting here in pre-op getting ready to switch Kai’s peg-tube to the mic-key button! It is so hard to believe but it’s been 6 months since Kai first got his feeding tube. We have learned so much and he is now consistently growing at an… Continue reading Day 3- understanding life with a feeding tube
Feeding tube awareness day 2
Topic: Why does your child have the tube they have now- a highlight of the medical conditions that require tube feeding. Kai was a great eater for the first 8 months of his life. In fact he e nursed constantly and loved solids just as much. He gained weight rapidly right from birth. At 8… Continue reading Feeding tube awareness day 2
Feeding Tube Awareness Week- day1
Today marks Day 1 of the second annual Feeding Tube Awareness Week, put on by http://www.feedintubeawareness.org The goal of Feeding Tube Awareness Week it to spread awareness and educate. Each day a new topic will be discussed. As you all know Kai was placed with a feeding tube in August 2011 after three months of… Continue reading Feeding Tube Awareness Week- day1
A short stay
Kai’s recovery from his ear infection was short lived. By Thursday he was back to being whiny and tired so we went straight to the pediatrician again. She said his ears were improving and he shouldn’t be this uncomfortable anymore. She was now worried about his shunt and wanted us to go into Children’s… Continue reading A short stay
Thank You!
Ahhh we live for these weeks off chemo! Unfortunately Kai remains pretty tired and irritable from his 4th chemo treatment last week, but we are hoping he will begin to feel better each day this week and enjoy some of this time off! He is getting 2 molars and seems to be starting a… Continue reading Thank You!
Tubie friends
Kai had his 4th week in a row of treatment yesterday, which means we successfully finished another cycle! He will now have a two week break before starting back up again. After next months cycle we will be back in MRI to see how things are looking. His treatment really seems to be settling into… Continue reading Tubie friends
Cuddles and Snuggles
Kai has needed lots of cuddles and snuggles the past few days. Going into chemo this week He wasn’t feeling so great. He had really low energy starting on sunday and he seemed to be in some pain. Of course it’s always hard to know for sure, is he just tired? In pain? Maybe he’s… Continue reading Cuddles and Snuggles
Keikikai 