So we did make it to Dana-Farber to talk about Kai’s treatment plan.  He will be receiving chemotherapy, out patient at the Jimmy Fund Clinic, once a week for 60 weeks.  The first 10 weeks he will go straight threw and after that he will have 3 weeks on, one week off.  Because it is low dose chemotherapy they said his immune system should hold up okay, which means we should still be able to be around other kids and do normal things most of the time.  He will have blood work done once a week to check his counts so we will know if his cells are too low and we should stay home for a few days.

After our meeting he had another surgery to place a port-a-cath in his chest where they will administer his chemotherapy. They will also be able to do all his blood work from here which means no more poking around for veins! He did well with the surgery and started chemo the following week.

The first chemo day was really hard on me.  Well the day itself went fine, he actually did great, but leading up to it was hard.  I guess this was the final step hat made it all real for me.  This is now our life for the next year and a half.  Chemotherapy is the best option we have to help him, which still seems so wrong. How can this be good for him? How can this be our life? How are we going to do this, week after week bring him in knowing it is going to make him sicker and sicker, hoping in the end it makes him better???

People tell me you get used to it and this all eventually just becomes routine, our new normal.  We have a long road ahead and I guess what they say is true, we just have to hope for the best and  take it one day at a time.