We have been in this hospital 16 of the past 21 days. Wow I really hope we get out today!
Tuesday his neurosurgeon agreed to adjust his shut level again and it seems to be helping. He has been eating since then and no longer vomiting. I have been keeping a food log so hopefully they will let us out today, just in time to make it to our appointment on Friday at Dana Farber/ Childrens Hospital in Boston.