Kai had another good night. He was awake a lot but he was pretty content. He did not have any pain meds and he tolerated the feeds and his chemo well. This morning the team came by and said the plan is to get us out of here tomorrow! We will continue to bump up… Continue reading Morning Rounds
Last year when Kai got his feeding tube it came with a little black backpack. Many kids who are mobile and who have continuous feeds throughout the day wear there feeding pump in this backpack. We used our backpack to hang the pump from the stroller most of the time. After a few months our… Continue reading Feeding Pump Backpack Conversion
After DAYS of Kai feeling pretty miserable, he seems to be almost back to himself this morning….of course tomorrow we are back for chemo Kai developed a pretty nasty cold after last weeks treatment. There were a few nights of continious hacking all night long and he spent most of each day sleeping. He wouldn’t… Continue reading Feeling better…just in time
