Powered by Kai to Advocate for Families Now: My testimony in support of S1138 On June 10, I joined a small group of pediatric palliative care professionals and advocates to testify before the State on behalf of providing comprehensive palliative care to ALL qualifying families in Massachusetts. I really had no idea what I was really agreeing too… Continue reading E pluribus unum, one out of many – advocating for all.
Today will be hard and long and filled with tears and hopefully a little laughter. In the days since Kai left us we have been surrounded by the love and support of our family and friends. Our house has been packed with food and drink. Candles have been lite and a fire in the fireplace… Continue reading Phantom cries