Powered by Kai to Advocate for Families Now: My testimony in support of S1138 On June 10, I joined a small group of pediatric palliative care professionals and advocates to testify before the State on behalf of providing comprehensive palliative care to ALL qualifying families in Massachusetts. I really had no idea what I was really agreeing too… Continue reading E pluribus unum, one out of many – advocating for all.
Another guest post for the Courageous Parents Network. http://courageousparentsnetwork.org/13-whats-in-a-t-shirt/ As a teenager, I spent hours scouring the Salvation Army and Goodwill shops for the perfect retro T-shirt: musty, holey, faded. Size didn’t matter nearly as much as insignia: Yoda, the Three Stooges, and my long time favorite ‘china’ written in kanji. I wore that shirt… Continue reading Identity | What’s in a T-shirt?
4/14/14 Today the roommates and I took a drive to eastern mass for a workshop and found ourselves with hours to spare upon our arrival. As we followed the GPS to our destination Ashley noticed a sprawling cemetery that surrounded us on either side of the road and suggested we take a walk through to kill… Continue reading A chance encounter
Several months ago I was asked to write a short piece for the Parent column for the American Academy of Pediatrics Section on Hospice and Palliative Medicine. I jumped at the opportunity but I hadn’t been writing much and was actually in a pretty bad place at the time and for weeks I struggled with what to… Continue reading Published: American Academy of Pediatrics Section on Hospice and Palliative Medicine
Today will be hard and long and filled with tears and hopefully a little laughter. In the days since Kai left us we have been surrounded by the love and support of our family and friends. Our house has been packed with food and drink. Candles have been lite and a fire in the fireplace… Continue reading Phantom cries