Another guest post for the Courageous Parents Network. http://courageousparentsnetwork.org/13-whats-in-a-t-shirt/ As a teenager, I spent hours scouring the Salvation Army and Goodwill shops for the perfect retro T-shirt: musty, holey, faded. Size didn’t matter nearly as much as insignia: Yoda, the Three Stooges, and my long time favorite ‘china’ written in kanji. I wore that shirt… Continue reading Identity | What’s in a T-shirt?
May 2013 Us cancer moms talk a lot about how helpful it is to be around others who “get it”. We always preface this gratitude with “I wish I didn’t know you” because that would mean our kids weren’t sick, but if I am in this at least we’re all in this together. As… Continue reading A New Camp: the year and 1/2 after
Re-blogging from the Courageous Parents Network. http://courageousparentsnetwork.org/post-4-this-is-not-a-choice-we-need-to-fund-medical-research-and-palliative-care/ By Blyth and Kerri We are both moms who have parented and loved children who have died from pediatric illness. One child died from a brain tumor that did not respond to multiple therapies and one child died from a genetic illness for which there was no treatment… Continue reading Medical Research and Palliative Care
A few months after Kai died I was invited to a round table discussion for parents of terminally ill children, hosted by the Pediatric Palliative Care program we were involved with. I was not exactly sure what this meeting would entail but I jump at any chance to talk about Kai, even if the focus… Continue reading Couragous Parents Network
Several months ago I was asked to write a short piece for the Parent column for the American Academy of Pediatrics Section on Hospice and Palliative Medicine. I jumped at the opportunity but I hadn’t been writing much and was actually in a pretty bad place at the time and for weeks I struggled with what to… Continue reading Published: American Academy of Pediatrics Section on Hospice and Palliative Medicine
Today is graduation! When I first looked into going back to school, when Kai was alive, a 13 month massage therapy program seemed totally doable. I wanted to help people. I wanted to help kids like Kai and Kai made me believe for the first time in my life that I could do anything. I… Continue reading 13 months and 10 weeks -Graduation
This is the story of Kai’s death. I wrote it the day after he died and thought about posting it many times before today but was just not ready. Today, a year later, I want to share the last moments I spend with him. Kai’s departure from this world was as labored and long… Continue reading the last breath