Last year when Kai got his feeding tube it came with a little black backpack. Many kids who are mobile and who have continuous feeds throughout the day wear there feeding pump in this backpack. We used our backpack to hang the pump from the stroller most of the time. After a few months our… Continue reading Feeding Pump Backpack Conversion
After DAYS of Kai feeling pretty miserable, he seems to be almost back to himself this morning….of course tomorrow we are back for chemo Kai developed a pretty nasty cold after last weeks treatment. There were a few nights of continious hacking all night long and he spent most of each day sleeping. He wouldn’t… Continue reading Feeling better…just in time
Opthomology went well. They said his vission is still stable, ‘no significant chamge’ my favorite statement….For one of the tests they cover one eye at a time to see how each eye does on it’s own. Kai was definatly very upset when his left eye was covered. We already know his right eye has less… Continue reading Day 5/ chemo
