This years Jimmy Fund Walk is less than a month away! I want to thank those who have donated to the cause this year So far Kai’s Fight Club has raised over $72.00 for Team H.E.A.L.S. helping bring the teams total to an amazing $10,369.45!!!! Since our team has met the $10,000 requirement I am… Continue reading One Month until the WALK!
It seems as though every time I say things are going well for Kai he takes a turn for the worse. Its nothing too bad (yet) but ever since his Avastin infusion on Wednesday he has not been himself. He is whiney and uncomfortable again. He has not slept well all week. I tried all… Continue reading Just another week
It’s been a little over a week since starting Kai’s new protocol and so far he is handling it very well. He has not needed any anti nausea or pain meds! He is a bit tired, but other than that he is doing well. I am also handling it better than expected! We do meds.… Continue reading Enjoying Summer
Today we started Kai’s 3rd new chemo protocol in 13 months… We really NEED this one to give us something as we are running out of options and time for Kai. His tumor is growing in a really bad spot, and while it is not growing aggressively the consequences of ANY growth in this area… Continue reading Chemo Protocol -take 3
It’s that time again. The 2012 Jimmy Fund Walk is quickly approaching and we would LOVE for you to join in the fun! last year was our first year at the walk, and we were delighted to see how many came out or donated in support of Kai. This year our efforts will go even… Continue reading Jimmy Fund Walk 2012
Kai woke up around 2 or 3 most mornings at camp. One morning we took a walk as the sun was coming up and took a few pics around camp.
Today is the last day of camp. We leave in the morning right after breakfast. It has been an amazing week and I will definitely be sad to go, but so thankful for all I have learned while I was here. This morning we had the opportunity to meet with a research doctor, Dr. Stiles,… Continue reading Letters from camp: day 5
Kai is finally feeling more like himself today. I just picked him up from the nursery and his volunteer told me she even got a little laugh out of him! He’s sill having a pretty ruff time overall so even a few smiles a day is a huge improvement from a few days ago. Between… Continue reading Letters from camp: day 4
By far the best part of today was the camp talent show! I had to fight the tears the whole show and it wasn’t even my kid up there on stage. The stage is such a vulnerable place to be and to watch these kids stand up there and put forth their talents and interests… Continue reading Letters from camp: day 3
Kai was so excited for his first full day of camp that he decided to wake up at 2:45 this morning He has been on steroids since Thursday and I think he was feeling the full effects by this morning. Thankfully after a few other meds to help take the edge off we were able… Continue reading Letters from camp: day 2
Keikikai 