We saw the most amazing Neurologist at umass and after talking with us and reading through Kai’s history she agreed that waiting another month was not a good idea. The team at Umass decided that the quickest, easiest, least risky option was to do an ultrasound. Because he is still a baby and his head is not yet fused , they can do an ultrasound threw the fontanel (soft spot). No sedation, no radiation and most importantly, no waiting!
The ultrasound revealed lots of fluid, almost 5 times what should be there! All I could think was how much pain he must have been in his whole life. The ultrasound was shocking and scary and heartbreaking, but also somewhat of a relief. Now we knew what was going on and they told us it was treatable! He would have to have surgery to place a shunt which would redirect the fluid into his abdomen where it would be reabsorbed.
We were admitted.