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Tag: Visually impaired

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Getting hard to do nothing

October 3, 2012October 5, 2012 keikikai13 Comments

The past few days have been tough on me. Kai is feeling better since we are treating his ear infection, but not as good as I had hoped. I’v been spending my days researching these stupid tumors again. Looking for treatments. Hoping that I can find something that I can convince myself might help him.… Continue reading Getting hard to do nothing

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‘typical’ kid stuff

October 1, 2012October 2, 2012 keikikai7 Comments

We had a good little stretch there. The week leading up to the wedding Kai was doing very well. He was on minimal meds and he had been doing great with all of his activities. I was really settling into the possibility that we would have many more of these content, stable days to share.… Continue reading ‘typical’ kid stuff

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A little fun

September 18, 2012September 26, 2012 keikikai9 Comments

Kai had been doing well for a few days. I have been able to back off of some of his pain meds (oxycodone) and eventually started pooping on his own (without the use of a suppository)! He has been tolerating a bit of food each day and has been awake and alert most of the… Continue reading A little fun

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Perkins Early Connections Conference

April 29, 2012April 29, 2012 keikikai4 Comments

We have been to Perkins School for the Blind a few times now but only for Ophthalmology appointments. The first time we went I was stunned at the size and beauty of the campus, but we are usually there after school hours and very few people are around. The place was still a bit of… Continue reading Perkins Early Connections Conference

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