The results of last weeks MRI were not what we were hoping for. After the team compared this MRI with one Kai had in December, they agreed the tumor is growing. This tumor is expanding in the mid brain/ brain stem area, which coincides with his current symptoms of lack of head control, muscle tone… Continue reading MRI results
I went into chemo last week feeling pretty uneasy. Kai’s head control and muscle tone has continued to worsen. Because of all our concern we decided to meet with physical therapy at children’s again to see if there is anything else we can be doing to help him get stronger. She saw him a few… Continue reading MRI July 5th
We have been trying anything and everything to get Kai to be ale to play, interact and do therapy. And while we do get some help from different organizations, we would not be able to provide Kai with these tools, toys and resources if it weren’t for all of the generous donations made Kai’s Fight… Continue reading Favorite Things
Last week I had the opportunity to attend the Massachusetts Early Intervention Consortium. http://www.maeic.net/index.html I was invited by our local EI and Regional Consultation Program, who funded the two day conference, meals and hotel stay. It was another great learning experience, the best of which was spending a few days with some amazing super moms… Continue reading Early Intervention conference
Keikikai 