I have reflecting back on my life with Kai lately. The things we did together, the choices I made for him. All along the way letting go of little pieces, bit-by-bit, of what I though life would be. Becoming a chemo mom, the mom of a child who may not survive, you learn to let… Continue reading Fear of commitment
This morning we had about 5 minutes of open eyes. His hands were cold and his fingers were blue yet his breaths and heart were steady. By midmorning his head was feeling warm to me and I noticed the color came back into his hands and feet. We decided to do some suctioning to try… Continue reading Saturday -fever
****This post was written last week a few days after starting Kai’s new pain meds. It was a ruff week and he was sleeping a lot and barely eating which all made us feel the end was near. It was a long hard week and I guess I forgot to post this writing so I… Continue reading Sleep -last week
So a decision has been made. Next week Kai will start on Avastin/Irinotecan. This protocol will be an IV infusion every two weeks at the clinic. It is disappointing to be starting all over again, but tonight I am relieved that the decision has been made. I went into today still not knowing which way… Continue reading Avastin/Irinotecan
