Day 3 of feeding tube awareness week and we are sitting here in pre-op getting ready to switch Kai’s peg-tube to the mic-key button! It is so hard to believe but it’s been 6 months since Kai first got his feeding tube. We have learned so much and he is now consistently growing at an… Continue reading Day 3- understanding life with a feeding tube
Kai had his 4th week in a row of treatment yesterday, which means we successfully finished another cycle! He will now have a two week break before starting back up again. After next months cycle we will be back in MRI to see how things are looking. His treatment really seems to be settling into… Continue reading Tubie friends
Wow what a horrible night here at childrens. Kais surgery went well. It was quick and seemingly simple just as they told me it should be. What they did not tell me is how horrible the recovery would be. He keeps waking up screaming every few hours. He is in so much pain it is… Continue reading Gtube surgery
Keikikai 