I was lucky enough to get a ticket to The Moth a few weeks ago and the theme happened to be Siblings. For those who don’t know The Moth is a live story telling event where participants put their name in a hat and are picked to tell a true 5 minute story live on stage with no… Continue reading Siblings
A few days ago a friend (also a bereaved mom) was talking about this thing that tends to happen after you have a kid with cancer. You become the ‘go to’ person when any other child is diagnosed. It happens to me all the time. My friend asked, Why would some parent of a newly… Continue reading How can I help???
Another guest post for the Courageous Parents Network. http://courageousparentsnetwork.org/13-whats-in-a-t-shirt/ As a teenager, I spent hours scouring the Salvation Army and Goodwill shops for the perfect retro T-shirt: musty, holey, faded. Size didn’t matter nearly as much as insignia: Yoda, the Three Stooges, and my long time favorite ‘china’ written in kanji. I wore that shirt… Continue reading Identity | What’s in a T-shirt?
May 2013 Us cancer moms talk a lot about how helpful it is to be around others who “get it”. We always preface this gratitude with “I wish I didn’t know you” because that would mean our kids weren’t sick, but if I am in this at least we’re all in this together. As… Continue reading A New Camp: the year and 1/2 after
4/14/14 Today the roommates and I took a drive to eastern mass for a workshop and found ourselves with hours to spare upon our arrival. As we followed the GPS to our destination Ashley noticed a sprawling cemetery that surrounded us on either side of the road and suggested we take a walk through to kill… Continue reading A chance encounter
Re-blogging from the Courageous Parents Network. http://courageousparentsnetwork.org/post-4-this-is-not-a-choice-we-need-to-fund-medical-research-and-palliative-care/ By Blyth and Kerri We are both moms who have parented and loved children who have died from pediatric illness. One child died from a brain tumor that did not respond to multiple therapies and one child died from a genetic illness for which there was no treatment… Continue reading Medical Research and Palliative Care
A few months after Kai died I was invited to a round table discussion for parents of terminally ill children, hosted by the Pediatric Palliative Care program we were involved with. I was not exactly sure what this meeting would entail but I jump at any chance to talk about Kai, even if the focus… Continue reading Couragous Parents Network
Several months ago I was asked to write a short piece for the Parent column for the American Academy of Pediatrics Section on Hospice and Palliative Medicine. I jumped at the opportunity but I hadn’t been writing much and was actually in a pretty bad place at the time and for weeks I struggled with what to… Continue reading Published: American Academy of Pediatrics Section on Hospice and Palliative Medicine